CAMBRIDGE, MA – 02-21-2019 (PRDistribution.com) — OFFERING RESEARCH, CONSULTING AND PATIENT RECRUITMENT
MedPanel, Inc., today announced the launch of a new division, rarediseasematters.com, which will provide research, consulting, and patient recruitment for pharmaceutical and biotechnology companies addressing the needs of patients with rare diseases.
“MedPanel has always been an industry leader in conducting market research in the rare disease space,” said MedPanel President Janet Bernard. “Now, with RareDiseaseMatters.com, we’re formalizing those efforts more broadly to support the growing needs of our customers.”
A rare disease is defined as one that affects a small percentage of a population. In Europe, a disease is defined as rare when it affects fewer than 1 in 2000 people; in the United States, when it affects fewer than 200,000 people at any given time.
More than 7,000 rare diseases are identified in the international disease database, including Alzheimer’s Disease, Cystic Fibrosis, Hodgkin’s Disease, Malignant Melanoma, Multiple Sclerosis, and Ulcerative Colitis.
The announcement precedes the February 24th-28th “Rare Disease Week on Capitol Hill Legislative Conference,” whose attendees include healthcare industry representatives, patients, caregivers, and advocacy organizations.
“As a market researcher, but more importantly as a nurse and patient advocate, it’s important that all of us working in healthcare come together to support the rare disease community,” said Kathleen Poulos, who is a melanoma survivor.
Rare Disease Statistics
“Over the years, the MedPanel team has developed expertise in rare disease patient recruitment and research,” said Poulos. “With RareDiseaseMatters.com, we’ll use those insights to amplify patients’ voices and connect them with our clients who are working to develop therapeutic treatments that could significantly change their lives.”
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